Collectively, the Coalition of Patient Advocacy Groups (CPAG) represents the perspective and interests of all patient advocacy organizations associated with the clinical research consortia. Through collaboration, patient advocacy groups and researchers can make faster progress toward new treatment options and cures, which can improve the lives of all persons and families affected by a rare disease. Learn More > | CPAG Committee Roster


Rare Diseases Advocacy Groups
Click on a Rare Diseases Network Consortium to see corresponding advocacy groups:

Angelman, Rett, and Prader-Willi Syndromes Consortium Genetic Disorders of Mucociliary Clearance Consortium Porphyrias Consortium Urea Cycle Disorders Consortium
Autonomic Rare Diseases Clinical Research Consortium INC logoInherited Neuropathies Consortium Primary Immune Deficiency Treatment Consortium (PIDTC) vcrc logoVasculitis Clinical Research Consortium
Brain Vascular Malformation Consortium noneLysosomal Disease Network Rare Kidney Stone Consortium  
noneChronic Graft Versus Host Disease Consortium (cGVHD) neptune logoNEPTUNE: Nephrotic Syndrome Rare Disease Clinical Research Network Salivary Gland Carcinomas Consortium  
dystonia Dystonia Coalition North American Mitochondrial Diseases Consortium STAIR: Sterol and Isoprenoid Diseases Consortium