About The Contact Registry

The Contact Registry is a method by which patients (asnd their families) can register themselves to be contacted in the future about clinical research opportunities. An online Registry form exists for all the NEPTUNE diseases currently being studied:

Download the Contact Registry Paper Form

The Rare Diseases Network has created a paper version of the Contact Registry form. This form can be downloaded by Physicians and Advocacy Groups in order to provide the form to those who need assistance outside the internet.