NEPTUNE

Nephrotic Syndrome Study Network

Nephrotic syndrome (NS) is a group of rare renal diseases with serious complications. The diseases that define Nephrotic Syndrome are Focal and Segmental Glomerulosclerosis (FSGS), Minimal Change Disease (MCD) and Membranous Nephropathy. Despite their rarity, these glomerular diseases generate enormous individual, economic and societal burdens. Some types of the syndrome are hereditary, but other types, for reasons largely unknown, can develop later in life.

The Nephrotic Syndrome Study Network (known as NEPTUNE) brings together physician scientists at 22 research consortia in the United States and Canada, along with the patient advocate groups, NephCure Kidney International and the Halpin Foundation, to advance research on the diseases that define NS. Already, NEPTUNE has collected biological material and detailed clinical data from more than 450 NS research participants, and has supported pilot and ancillary studies utilizing the NEPTUNE data resources.

Now in the second 5-year funding cycle, NEPTUNE continues to recruit more research participants as well as to continue to support training and research programs for scientists and clinicians. You can find information on the NEPTUNE Ancillary Studies Program and grant and fellowship programs on this website.