Useful Links and Resources

Office for Human Research Protections (OHRP) - Public Outreach

The Genetics Home Reference Web Site

The Muscular Dystrophy Association

NINDS Myotonia Congenita Information Page

NINDS Familial Periodic Paralyses Information Page

NINDS Ataxias and Cerebellar/Spinocerebellar Degeneration Information Page

The Muscular Dystrophy Campaign Web Site - A UK based charity that gives advice and support to patients and relatives with muscular dystrophy and allied disorders; this web site includes information on non-dystrophic myotonias and periodic paralysis

University of California San Francisco - Laboratories of Neurogenetics

NEUROMUSCULAR DISEASE CENTER Washington University, St. Louis

Mark's Episodic Ataxia Web Page

National Ataxia Foundation

Periodic Paralysis Resource Center - Periodic Paralysis Association

Links to MDA Materials on Channel Diseases:

Facts About Myopathies

Not Crazy or Lazy: Periodic Paralysis Brings Frustration, Misunderstanding, But Can Be Managed,” Quest, vol. 5, no. 3, June 1998

Coping With Anesthesia: Neuromuscular Disorders Pose Special Risks, But Preparation Minimizes Dangers,” Quest, vol. 7, no. 3, June 2000

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