Working to advance the pace of clinical and translational research in the dystonias to find better treatments.
Join One of Our Research Studies
Participants make it possible for researchers to find new treatments, speed up diagnosis, and improve the lives of those affected by rare diseases.
Find a Study2024 Dystonia Coalition Webinar
The Dystonia Coalition (DC) held a webinar in March of 2024 to provide updates on current projects and launch discussion on future plans.
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Rare Research Report: March 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families
The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.