Bringing together patients, physicians, and researchers to improve the lives of those affected by these rare disorders
Join One of Our Research Studies
Research offers no guarantees, but discoveries cannot be made without your help. Every active role a patient takes is one step closer to finding new treatments.
Find a StudyNational Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families
The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.
Join the RDCRN for Rare Disease Day at NIH on February 29, 2024
Don’t miss the in-person and virtual celebration of Rare Disease Day at NIH on Thursday, February 29, 2024, from 9 am to 5 pm EST.
Twenty Years of the Rare Diseases Clinical Research Network: Looking Back, Looking Ahead
The Rare Diseases Act of 2002 (H.R. 4013) enacted the establishment of the Rare Diseases Clinical Research Network (RDCRN) in 2003.