Rare Kidney Stones Consoritum

About Us

Contact the RKSC

For questions about the RKSC Consortium, please contact:

Primary Hyperoxaluria Program

Dr. Dawn S. Milliner, Program Director
Mayo Clinic
200 First Street SW
Rochester, MN 55905
Study Coordinators: Julie Olson, RN/ Barb Seide
E-mail: hyperoxaluriacenter@mayo.edu
Phone: 800-270-4637

Cystinuria Program

Dr. David Goldfarb, Program Director
423 East 23 Street, 111G
VA New York Harbor Healthcare System
Veterans Administration
New York, NY 10010
Program Contact: Frank Modersitzki, MPH
E-mail: cystinuria@nyumc.org

APRT Deficiency Program

Dr. Vidare Edvardsson
Landspitali University Hospital
Hringbraut, 101 Reykjavik Iceland
Study Coordinator: Inger M. Sch. Agustsdottir, RN
E-mail: ingeragu@lsh.is

Dent Disease Program

Dr. John C. Lieske, Program Director
Mayo Clinic
200 First Street SW
Rochester, MN 55905
Study Coordinators: Julie Olson, RN/ Barb Seide
E-mail: rarekidneystones@mayo.edu
Phone: 800-270-4637


If you would like to find contact information for our individual participating clincial centers, please visit the Participating Clinical Centers.

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