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Research Studies

Advocacy Groups and Information

Information for

News & Events

Participating Clinical

Contact Information

Useful Links and Resources

Office for Human Research Protections (OHRP)

The Genetics Home Reference Web Site

The Muscular Dystrophy Association

NINDS Myotonia Congenita Information Page

NINDS Familial Periodic Paralyses Information Page

NINDS Ataxias and Cerebellar/Spinocerebellar Degeneration Information Page

The Muscular Dystrophy Campaign Web Site - A UK based charity that gives advice and support to patients and relatives with muscular dystrophy and allied disorders; this web site includes information on non-dystrophic myotonias and periodic paralysis

University of California San Francisco - Laboratories of Neurogenetics

NEUROMUSCULAR DISEASE CENTER Washington University, St. Louis

Mark's Episodic Ataxia Web Page

National Ataxia Foundation

Periodic Paralysis Association

New York Online Access to Health

Links to MDA Materials on Channel Diseases:

Facts About Myopathies

Not Crazy or Lazy: Periodic Paralysis Brings Frustration, Misunderstanding, But Can Be Managed,” Quest, vol. 5, no. 3, June 1998

Coping With Anesthesia: Neuromuscular Disorders Pose Special Risks, But Preparation Minimizes Dangers,” Quest, vol. 7, no. 3, June 2000