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Find a Study

How do I learn more about current open studies?

Below you will find a list of current studies. Clicking on the link will take you to the study summary, which will provide you with all the important details for each study

How do I participate in a study?

Each study summary provides a list of hospitals or clinics where the study is being run. Using the contact information provided, you may contact any of these facilities in order to request participation in a study.

Non-dystrophic Myotonic Disorders

Join the Registry for this Disorder | What are Non-dystrophic Myotonic Disorders?


Andersen-Tawil Syndrome (a form of Periodic paralysis)

Join the Registry for this Disorder | What is Anderson-Tawil Syndrome?


Episodic Ataxias

Join the Registry for this Disorder | What are Episodic Ataxias?


Please Note: We will make every effort to enroll all the patients we can, but we cannot make any guarantees that we will be able to enroll everyone in a particular study who wants to participate.

This list was last updated on 26 March 2012