Working together to improve the outcome for patients with rare, life-threatening, inherited disorders of the immune system.
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See opportunities to participate in research and help further innovations in care for patients like you.
Find a StudyLearn About Newborn Screening
Infants with SCID who are transplanted before 3 months of age fare better than infants who are transplanted later in life. Learn more about newborn screenings for SCID and help improve outcomes for this rare disorder in the future.
Learn MoreRare Research Report: February 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families
The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.
Join the RDCRN for Rare Disease Day at NIH on February 29, 2024
Don’t miss the in-person and virtual celebration of Rare Disease Day at NIH on Thursday, February 29, 2024, from 9 am to 5 pm EST.
PIDTC Updates
Issue 17 | Winter
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