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BVMC Investigators

Michael T. Lawton, MD
Barrow Neurological Institute
Program Director (PI)

Douglas A., Marchuk, PhD
Duke University
Program Co-Director (Co-PI)

Project 1 - Cerebral Cavernous Malformations (CCM) - view protocol information

Helen Kim, MPH, PhD 
University of California, San Francisco
Team Leader

Atif Zafar, MD 
University of New Mexico, Albuquerque, New Mexico
Team Leader

Michael T. Lawton, MD
Barrow Neurological Institute, Phoenix, AZ
Investigator

Amy L. Akers, PhD
Angioma Alliance, Durham, NC
Investigator

Marc Mabray, MD
University of New Mexico, Albuquerque, New Mexico.
Investigator

Patient Advocacy Group

Amy Akers (Angioma Alliance)

Project 2 - Sturge-Weber Syndrome (SWS) Leptomeningeal angiomatosis - view protocol information

Anne P. Comi, MD
Kennedy Krieger Institute, John Hopkins, Baltimore, MD
Team Leader

Douglas A., Marchuk, PhD
Duke University, Durham, NC
Co-Leader

Warren Lo, MD
Nationwide Children’s Hospital, Columbus, OH
Investigator

Csaba Juhasz, MD, PhD
Children’s Hospital of Michigan, Wayne State University, Detroit, MI
Investigator

Daniel Miles, MD
New York University Medical Center, New York City, NY
Investigator

Marsha Moses, PhD.
Boston Children's Hospital, Harvard Medical School, Boston, MA
Investigator

Alex Levin, MD, MHSc
Wills Eye Hospital, Thomas Jefferson University, Philadelphia, PA
Investigator

Adrienne Hammill, MD
Cincinnati Children’s Hospital, Cincinnati, OH
Investigator

Anna Pinto, MD
Boston Children's Hospital, Boston, MA
Investigator

Sharon Freedman, MD
Duke University, Durham, NC
Investigator

Patient Advocacy Group

Karen L. Ball (Sturge-Weber Foundation)

Project 3 - Brain AVMs in Hereditary Hemorrhagic Telangiectasia - view protocol information

Marie E., Faughnan, MD
University of Toronto, St. Michael's Hospital, Toronto, Canada
Team Leader

Michael T. Lawton, MD
University of California, San Francisco
Co-Leader

Patient Advocacy Group

Marianne S. Clancy (CureHHT)

 

Genetic and Statistical Analysis Core (GSAC)

Charles E. McCulloch, PhD
University of California, San Francisco
Core Leader

Ludmila Pawlikowska, PhD
University of California, San Francisco
Co-Core Leader

Pui-Yan Kwok, MD, PhD
University of California, San Francisco
Consultant