Welcome To CreATe

Our Mission

The Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe) Consortium will enroll patients with sporadic and familial forms of amyotrophic lateral sclerosis, frontotemporal dementia (FTD), primary lateral sclerosis (PLS), hereditary spastic paraplegia (HSP), and progressive muscular atrophy (PMA). The goals of the CReATe consortium are to advance therapeutic development for this group of neurodegenerative disorders through study of the relationship between clinical phenotype and underlying genotype, and also through the discovery and development of biomarkers.

 

Clinical Research Training Scholarship in ALS and Related Disorders

Funded by the CReATe Consortium and American Brain Foundation

In collaboration with the American Academy of Neurology

Application Deadline: October 1, 2020

This award aims to support young investigators engaged in clinical research focused on ALS, ALS-FTD, PLS, PMA, and HSP.

For further details and to apply click here.

 

Research survey for rare disease patients and their families about impacts of COVID-19

How is the novel coronavirus pandemic impacting people with rare diseases and their families? Complete the 20-minute research survey from home or learn more at this link.

Patient Survey

RDCRN

Join CReATe Connect!
An RDCRN Contact Registry

Research offers no guarantees, but research cannot move forward without your help. Every active role a patient takes may possibly play a part in discovering new groundbreaking research and finding new treatments.

Already Registered? Login
Informational Handout

 
 
 

CReATe Twitter

CReATe Podcasts

The CReATe Connect podcasts are short recorded interviews on topics we hope will be of interest to patients with ALS and other motor neuron diseases.

Listen to "CReATe Podcast" on Spreaker.

All podcasts

CReATe Biorepository

Given the increasing recognition that the development and validation of biomarkers will require collaboration, the CReATe Consortium has established a repository of biological samples collected from patients.

Learn more