Our Mission

The Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe) Consortium will enroll patients with sporadic and familial forms of amyotrophic lateral sclerosis, frontotemporal dementia (FTD), primary lateral sclerosis (PLS), hereditary spastic paraplegia (HSP), and progressive muscular atrophy (PMA). The goals of the CReATe consortium are to advance therapeutic development for this group of neurodegenerative disorders through study of the relationship between clinical phenotype and underlying genotype, and also through the discovery and development of biomarkers.

Clinical Research Training Scholarship in ALS and Related Disorders

Funded by the CReATe Consortium and American Brain Foundation

In collaboration with the American Academy of Neurology

Application Deadline: October 1, 2020

This award aims to support young investigators engaged in clinical research focused on ALS, ALS-FTD, PLS, PMA, and HSP.

For further details and to apply click here.

Research survey for rare disease patients and their families about impacts of COVID-19

How is the novel coronavirus pandemic impacting people with rare diseases and their families? Complete the 20-minute research survey from home or learn more at this link.