Patients
CReATe Virtual Journal Club for Patients and Families

The CReATe Virtual Journal Club is designed to help patients and families understand and discuss recent scientific papers about motor neuron diseases. The articles are selected by patients and families enrolled in CReATe Connect. Enrollment is free and easy!

Upcoming Virtual Journal Club Webinars

Mark your calendars for the next CReATe Virtual Journal Club. This article was selected by you, the CReATe Connect registrants, through a voting process.

Dr. Meredith Jackrel from University of Pennsylvania will present her paper, Protein Remodeling Factors as Potential Therapeutics for Neurodegenerative Disease. Jackrel ME, Shorter J. Front Neurosci. 2017 Feb 28;11:99. doi: 10.3389/fnins.2017.00099. Review. 

A copy of this paper is available here.

Webinar Details:
Date: Wed, Jun 14, 2017
Time: 2:00 PM - 3:00 PM Eastern Standard Time
Link to join: https://global.gotomeeting.com/join/157970605

For audio, you may use your computer mic/speakers through the link above or call in using your phone:

  • United States (Toll-free): 1 866 899 4679
  • Audio pin (optional): Shown after joining the webinar
  • If you will be calling in from another country, you may email sumaira.hussain@med.miami.edu to request a toll-free phone number.

Meeting ID/Access Code: 157-970-605

Past Virtual Journal Club Webinars
  1. Our first Virtual Journal Club was led by Dr. Avindra Nath, on his paper entitled "Human Endogenous Retrovirus-K Contributes to Motor Neuron Disease" and can be viewed here.
  2. Our second Virtual Journal Club was led by Dr. Eva Feldman, on her paper entitled "Intraspinal Neural Stem Cell Transplantation in Amyotrophic Lateral Sclerosis: Phase 1 Trial Outcomes" and can be viewed here.
  3. Our third Virtual Journal Club was led by Dr. Richard Bedlack on his paper entitled "How common are ALS plateaus and reversals?" and can be viewed here.
  4. Our fourth Virtual Journal Club was led by Dr. Rebecca Schüle, on her paper entitled "Hereditary spastic paraplegia: Clinicogenetic lessons from 608 patients" and can be viewed here.
  5. Our fifth Virtual Journal Club was led by Dr. Jeri Nieves, on her paper entitled "Association between dietary intake and function in amyotrophic lateral sclerosis" and can be viewed here.
ALS Open Studies

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Useful Links

ALS Association (ALSA) (http://www.alsa.org)

Muscular Dystrophy Association (MDA) (http://mda.org)

Motor Neurone Disease Association (http://www.mndassociation.org)

Spastic Paraplegia Foundation, Inc. (SPF) (https://sp-foundation.org)

The Association for Frontotemporal Degeneration (AFTD) (http://www.theaftd.org)

PatientsLikeMe (PLM) (http://www.patientslikeme.com)

National ALS Registry (https://wwwn.cdc.gov/als/Default.aspx)

Northeast Amyotrophic Lateral Sclerosis Consortium (NEALS) (http://www.alsconsortium.org)

Clinicaltrials.gov (http://clinicaltrials.gov)

ALSUntangled (http://www.alsuntangled.org)

ALS Research Collaboration (http://als-research.org)

fALSConnect (http://falsconnect.org)