Patients
CReATe Virtual Journal Club for Patients and Families

The CReATe Virtual Journal Club is designed to help patients and families understand and discuss recent scientific papers about motor neuron diseases. The articles are selected by patients and families enrolled in CReATe Connect. Enrollment is free and easy!

Past Virtual Journal Club Webinars
  1. Our first Virtual Journal Club was led by Dr. Avindra Nath, on his paper entitled "Human Endogenous Retrovirus-K Contributes to Motor Neuron Disease" and can be viewed here.
  2. Our second Virtual Journal Club was led by Dr. Eva Feldman, on her paper entitled "Intraspinal Neural Stem Cell Transplantation in Amyotrophic Lateral Sclerosis: Phase 1 Trial Outcomes" and can be viewed here.
  3. Our third Virtual Journal Club was led by Dr. Richard Bedlack on his paper entitled "How common are ALS plateaus and reversals?" and can be viewed here.
  4. Our fourth Virtual Journal Club was led by Dr. Rebecca Schüle, on her paper entitled "Hereditary spastic paraplegia: Clinicogenetic lessons from 608 patients" and can be viewed here.
  5. Our fifth Virtual Journal Club was led by Dr. Jeri Nieves, on her paper entitled "Association between dietary intake and function in amyotrophic lateral sclerosis" and can be viewed here.
  6. Our sixth Virtual Journal Club was led by Dr. Meredith Jackrel, on her paper entitled "Protein Remodeling Factors as Potential Therapeutics for Neurodegenerative Disease" and can be viewed here.
ALS Open Studies

View a larger version of ALS Clinical Studies

Useful Links

ALS Association (ALSA) (http://www.alsa.org)

Muscular Dystrophy Association (MDA) (http://mda.org)

Motor Neurone Disease Association (http://www.mndassociation.org)

Spastic Paraplegia Foundation, Inc. (SPF) (https://sp-foundation.org)

The Association for Frontotemporal Degeneration (AFTD) (http://www.theaftd.org)

PatientsLikeMe (PLM) (http://www.patientslikeme.com)

National ALS Registry (https://wwwn.cdc.gov/als/Default.aspx)

Northeast Amyotrophic Lateral Sclerosis Consortium (NEALS) (http://www.alsconsortium.org)

Clinicaltrials.gov (http://clinicaltrials.gov)

ALSUntangled (http://www.alsuntangled.org)

ALS Research Collaboration (http://als-research.org)

fALSConnect (http://falsconnect.org)