Patient Support and Advocacy Groups

Patient advocacy groups specializing in developmental synaptopathies are here to help you. They are devoted to providing support, resources and services for patients and families. Join these groups to help yourself, your family, and other patients.


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The Phelan-McDermid Syndrome Foundation:

www.pmsf.org


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Tuberous Sclerosis Alliance:

www.tsalliance.org


PTEN Life:

www.ptenlife.com


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PTEN World:

www.ptenworld.com


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PTEN Hamartoma Tumor Syndrome Foundation:

www.ptenfoundation.org


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National Institute of Neurological Disorders and Stroke

ninds.nih.gov/

 

 

Patient Advocacy