PTEN Webinar 3/28/16

 Caregiver Information for the ABC

 RDCRN DSC Training Program Presentation

https://www.simonsvipconnect.org/
The Simons Variation in Individuals Project (Simons VIP) aims to better understand the features associated with certain genetic changes that have been found in individuals with autism spectrum disorder or developmental delay. The Simons VIP Connect website is also a family-support resource that aims to connect families who have rare genetic changes with each other and with researchers.  SVIP Familiy Friendly Single Gene Recruitment Flyer

PMSF Webinar 8/04/15

http://www.tsalliance.org/index.aspx
Click on "For School Issues" - numerous excellent publications to share with your child's teachers

http://nichcy.org/
State resource sheets provide all special needs organizations in the state - helpful contact information which is kept up to date.

http://www.doe.mass.edu/
Massachusetts Department of Education has a lot of information for parents about the special education process as well as parents' rights. Other states have similar sites.

http://fcsn.org/index.php
Federation for Children with Special Needs. Massachusetts parent advocacy and information group.

http://www.spanmass.org/
Lists all of the educational advocates and special needs lawyers in MA.

http://www.autismspeaks.org/
Provides great resources and suggestions including apps for children with autism.

http://www.dlc-ma.org/
Disability Law Center. They will provide low cost or free legal advice for children with special needs.

http://www.ncld.org/
Provides excellent information about learning disabilities and how to support a child with learning differences.

http://www.ldonline.org/
The world's leading resource on learning disabilities.

http://phdinspecialeducation.com/special-needs-twitter-accounts/
A list of exceptional twitter accounts covering special needs.

http://www.ncbi.nlm.nih.gov/books/NBK1198/

http://22q13.org

http://ghr.nlm.nih.gov/condition/22q133-deletion-syndrome

http://ghr.nlm.nih.gov/gene/SHANK3

http://www.shank3gene.org/

http://www.rarediseases.org

http://ghr.nlm.nih.gov/gene/PTEN

http://www.ncbi.nlm.nih.gov/books/NBK1488/

http://ptenlife.com

http://www.ptenworld.com

http://my.clevelandclinic.org/services/genomics-genetics/subspecialties/pten-clinic

http://www.ptenfoundation.org

http://tsclinic.org

http://www.seaverautismcenter.org