PTEN Webinar 3/28/16
Caregiver Information for the ABC
RDCRN DSC Training Program Presentation
https://www.simonsvipconnect.org/ The Simons Variation in Individuals Project (Simons VIP) aims to better understand the features associated with certain genetic changes that have been found in individuals with autism spectrum disorder or developmental delay. The Simons VIP Connect website is also a family-support resource that aims to connect families who have rare genetic changes with each other and with researchers. SVIP Familiy Friendly Single Gene Recruitment Flyer
PMSF Webinar 8/04/15
http://www.tsalliance.org/index.aspx Click on "For School Issues" - numerous excellent publications to share with your child's teachers
http://nichcy.org/ State resource sheets provide all special needs organizations in the state - helpful contact information which is kept up to date.
http://www.doe.mass.edu/ Massachusetts Department of Education has a lot of information for parents about the special education process as well as parents' rights. Other states have similar sites.
http://fcsn.org/index.php Federation for Children with Special Needs. Massachusetts parent advocacy and information group.
http://www.spanmass.org/ Lists all of the educational advocates and special needs lawyers in MA.
http://www.autismspeaks.org/ Provides great resources and suggestions including apps for children with autism.
http://www.dlc-ma.org/ Disability Law Center. They will provide low cost or free legal advice for children with special needs.
http://www.ncld.org/ Provides excellent information about learning disabilities and how to support a child with learning differences.
http://www.ldonline.org/ The world's leading resource on learning disabilities.
http://phdinspecialeducation.com/special-needs-twitter-accounts/ A list of exceptional twitter accounts covering special needs.
http://www.ncbi.nlm.nih.gov/books/NBK1198/
http://22q13.org
http://ghr.nlm.nih.gov/condition/22q133-deletion-syndrome
http://ghr.nlm.nih.gov/gene/SHANK3
http://www.shank3gene.org/
http://www.rarediseases.org
http://ghr.nlm.nih.gov/gene/PTEN
http://www.ncbi.nlm.nih.gov/books/NBK1488/
http://ptenlife.com
http://www.ptenworld.com
http://my.clevelandclinic.org/services/genomics-genetics/subspecialties/pten-clinic
http://www.ptenfoundation.org
http://tsclinic.org
http://www.seaverautismcenter.org