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Resources for Patients and Families

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The TSC Alliance: School Issues

The TSC Alliance, a nonprofit organization working to improve the lives of people with tuberous sclerosis complex (TSC), offers helpful guidance for navigating educational and school-related issues, including numerous excellent publications to share with your child's teachers.

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The Center for Parent Information and Resources

The Center for Parent Information and Resources is a central hub of information and products created for the network of Parent Centers serving families of children with disabilities. Resource sheets list every special needs organization by state, including up-to-date contact information.

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Massachusetts Department of Elementary and Secondary Education

The Massachusetts Department of Education offers a wealth of information for parents regarding the special education process, as well as parents' rights. Other states have similar sites.

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Federation for Children with Special Needs

The Federation for Children with Special Needs is a parent advocacy and information group workng to to provide information, support, and assistance to parents of children with disabilities. They are located in Massachusetts.

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The Special Needs Advocacy Network

The Special Needs Advocacy Network lists all of the educational advocates and special needs lawyers in Massachusetts.

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Autism Speaks

Autism Speaks provides great resources and suggestions including apps for children with autism.

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Disability Law Center

Disability Law Center is the Protection and Advocacy agency for Massachusetts. DLC is a private, non-profit organization providing low cost or free legal advice for Massachusetts residents with disabilities.

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National Center for Learning Disabilities

Provides excellent information about learning disabilities and how to support a child with learning differences.

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LD Online: All About Learning Disabilities and ADHD

LD Online is the world's leading resource on learning disabilities. The website offers a wealth of materials, including articles, multimedia, monthly columns by noted experts, first person essays, children’s writing and artwork, a comprehensive resource guide, very active forums, and more.

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10 Great Twitter Resources for Parents of Special Needs Children

Today Parenting Team contributor Elizabeth Montgomery shares a list of exceptional twitter accounts that share resources for families of special needs children.

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PTEN World

PTEN World is a blog and discussion forum dedicated to supporting patients and families affected by PTEN hamartoma tumor syndrome (PHTS), Cowden syndrome (CS), and Bannayan-Riley-Ruvalcaba syndrome (BRRS). Individuals are welcome to register for membership to participate in this bustling online community.

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