How do I learn more about current open studies?
Below you will find a list of current studies. Clicking on the link will take you to the study summary, which will provide you with all the important details for each study.


 How do I participate in a study?
Each study summary provides a list of hospitals or clinics where the study is being run. Using the contact information provided, you may contact any of these facilities in order to request participation in a study.

Studies Recruiting Patients

If you are interested in seeing a listing of dystonia research, please visit the website

  • 6301: Dystonia Coalition Projects: Natural History of Primary Dystonia
  • 6301: Dystonia Coalition Projects: Biorepository for Primary Dystonia
  • 6301: Dystonia Coalition Projects: Comprehensive Rating Tools for Cervical Dystonia
  • 6301: Dystonia Coalition Projects: Diagnostic and Measurement Tools for Spasmodic Dysphonia
  • 6303: Validity and Reliability of the Spasmodic Dysphonia Diagnosis and Assessment Procedure (SD-DAP) for Quantifying Symptom Change

Please Note: The Rare Diseases Clinical Research Network will make every effort to enroll all the patients we can, but we cannot make any guarantees that we will be able to enroll everyone in a particular study who wants to participate.