You may choose to share your contact information with researchers and/or with patient advocacy groups. Sharing your information is completely optional.
If you agree to share your contact information, the information you enter into the RDCRN Contact Registry Enrollment Form will be sent to the researchers and/or patient advocacy groups that you choose so that they may contact you directly.
When you share your contact information with researchers, they may use your information to match you with current studies. They may also contact you to ask you for additional information in order to determine whether you can join a study.
If you do not want any of your contact information to be sent to researchers or patient advocacy groups, you can choose "Please do not share my information with anyone." Choosing not to share your information will not affect your ability to join the RDCRN Contact Registry or research studies.