• Harbor-UCLA Medical Center, Torrance
  • Children's Hospital Los Angeles
  • Stanford University
  • University of Miami Miller School of Medicine, Coral Gables
  • Emory University/Children’s Healthcare of Atlanta
  • John H. Stroger, Jr., Cook County Hospital
  • The Johns Hopkins University School of Medicine, Baltimore
  • NIDDK, Bethesda
  • University of Michigan, Ann Arbor
  • Mayo Clinic, Rochester
  • Children’s Mercy Hospital
  • Cohen Children’s Hospital New Hyde Park
  • Columbia University, New York
  • Montefiore Medical Center, Bronx
  • New York University, New York
  • University of North Carolina, Chapel Hill
  • Wake Forest University, Winston-Salem
  • Case Western Reserve University, Cleveland
  • University Health Network, Toronto
  • Temple University, Philadelphia
  • University of Pennsylvania, Philadelphia
  • University of Texas Southwestern, Dallas
  • University of Washington, Seattle

Harbor-UCLA Medical Center
Torrence, CA

Division of Nephrology and Hypertension
1124 W. Carson St.
Torrence, CA 90502

Investigators:

Sharon Adler, MD
Principal Investigator, Professor

Cynthia Nast, MD
Co-Investigator, Professor of Pathology
Cedars-Sinai Health System

To make an appointment in the Nephrology Clinic, please contact:

Research Coordinator:
Janine LaPage

Study Contact at CHLA:
Janine LaPage
Phone: 310-222-4101
E-mail: jlapage@labiomed.org

Children's Hospital Los Angeles

Children’s Hospital Los Angeles
Los Angeles, CA

A part of the Keck School of Medicine of the University of Southern California
4650 Sunset Blvd MS# 40
Los Angeles, CA 90027
Phone: 323-361-2102

Investigators:

Kevin V. Lemley, MD, PhD
Principal Investigator, Professor

To contact this site for information related to NEPTUNE:

Research Coordinators:
Lauren Whitted
lwhitted@chla.usc.edu

About Us

Children’s Hospital Los Angeles is a non-profit, freestanding children’s hospital with a reputation as an international leader in providing state-of-the-art medical care for children.

Children Hospital Los Angeles, acknowledged for its leadership in pediatric and adolescent health, has evolved into one of the world’s finest pediatric academic medical centers, due in large part to its association with the Keck School of Medicine of the University of Southern California.

The American Nurses Credentialing Center has accorded our hospital with Magnet Recognition. Magnet status is used as a national benchmark of the quality of care provided by a hospital's nursing force. Our hospital is one of eight children's hospitals nationally to be designated a "Top Hospital" for 2009 by The Leapfrog Group.

General Nephrology

Our physicians see patients with a wide range of general nephrologic problems referred by community physicians. We make every effort to see patients quickly (within 24-48 hours, when needed).

Dialysis

In 1967, we became one of the first groups in the nation to provide comprehensive dialysis services to children. At any given time, we care for approximately 50-60 patients who are undergoing chronic dialysis. Improvements in dialysis technology and clinical expertise enable even the smallest of children, including newborns, to receive safe, effective dialysis. Peritoneal dialysis is preferentially used to treat young, small patients, since families can be trained to handle this procedure at home.

Renal (Kidney) Transplantation Program

In conjunction with the Transplant Surgeons of the USC Transplant Institute in the Keck School of Medicine, we care for patients who receive kidney transplants. The source of the transplant is either a living related donor (usually a parent) or a deceased donor. The Program is extremely successful, achieving patient and graft survival statistics that rival the finest programs in the United States.

Links

Children's Hospital Los Angeles Web Site

Stanford University
Stanford, CA

Contact Information:

Investigators:

Richard Lafayette, MD, PhD
Principal Investigator
czar@stanford.edu

To make an appointment in the Nephrology Clinic, please contact:

Research Coordinators & Study Contact:
Kshama Mehta, PhD
krmehta@stanford.edu

University of Miami Miller School of Medicine
Miami, FL

Division of Nephrology & Hypertension
Clinical Research Building (C-221)
1120 NW 14th St, Suite 806
Miami, FL 33136
Phone: 305-243-8793

Contact Information:

Investigators:

Adult Nephrology

Alessia Fornoni , MD, PhD, FASN
Principal Investigator, Associate Professor of Medicine
afornoni@med.miami.edu

Pediatric Nephrology

Gaston Zilleruelo, MD
Principal Investigator, Professor of Pediatrics
gzilleruelo@med.miami.edu

Pathology

Laura Barisoni, MD
Principal Investigator, Professor of Pathology
Lead NEPTUNE Pathologist and Co-Chair of the Histopathology Committee
LBarisoni@med.miami.edu

David Thomas, MD
Co-Investigator, Professor of Clinical Pathology
d.thomas6@miami.edu

Monica Garcia-Buitrago, MD
Co-Investigator, Associate Professor of Clinical Pathology
mgarcia22@med.miami.edu

To make an appointment in the Nephrology Clinic, please contact:

Allison Barchi-Chung
Research Coordinator
Division of Nephrology & Hypertension
Phone: 305-243-8793
E-mail: abarchi@med.miami.edu

Emory University/Children’s Healthcare of Atlanta

Emory University/Children’s Healthcare of Atlanta
Atlanta, GA

Emory Children’s Center
Division of Pediatric Nephrology
2015 Upper Gate Dr. NE
Atlanta, GA 30322
Phone: 404-727-5750

Children’s Healthcare of Atlanta
Outpatient Pediatric Research Center
1405 Clifton Road NE
Atlanta, GA 30322
Phone: 404-785-0400

Contact Information:

Investigators:

Larry Greenbaum, MD, PhD
Principal Investigator
lgreen6@emory.edu

To contact this site for information related to NEPTUNE:

Brian Lee 
Study Coordinator
brian.lee3@emory.edu
Phone: 404-712-NEPH

About Us

Emory-Children's Center (ECC), a not-for-profit organization and a joint venture between Emory Healthcare and Children's Healthcare of Atlanta, is one of the largest pediatric multispecialty group practices in Georgia. The center includes more than 200 Emory University School of Medicine faculty working in more than 20 specialties and subspecialties that are actively involved with pediatric clinical care, teaching, research and child advocacy efforts in Georgia and throughout the Southeast.

Links

http://www.emory-childrenscenter.org/
http://www.choa.org/Pediatric-Research

John H. Stroger, Jr., Cook County Hospital
Chicago, IL

PI: Ambarish Athavale, MD
aambarish@cookcountyhhs.org

Mathew Itteera
Clinical Research Coordinator
mathew.itteera@cookcountyhhs.org

Johns Hopkins Medical Institutes

Johns Hopkins Medical Institutes
1800 Orleans Street
Baltimore, MD 21287
http://www.hopkinsmedicine.org/

Investigators:

Alicia Neu, MD
Principal Investigator
aneu1@jhmi.edu

Michael Choi, MD
Co-investigator
mchoi3@jhmi.edu

Study team:

Department of Medicine, Division of Nephrology
C. John Sperati, MD, MHS
jsperati@jhmi.edu
Michelle M. Estrella, MD, MHS
mestrel1@jhmi.edu

Department of Pediatrics, Division of Nephrology
Tammy Brady, MD, MHS, PhD
tbrady8@jhmi.edu

Department of Pathology
Serena Bagnasco, MD
sbagnas1@jhmi.edu
Lois Arend, PhD, MD
ljarend@jhu.edu

To contact this site for information related to NEPTUNE:

Sara Boynton
sboynto3@jhmi.edu
Phone: 443-287-9051

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Bethesda, MD

US Public Health Service
10 Center Drive, 3N116
Bethesda, MD 20892-1267
Phone: 301-594-3403

Contact Information:

Investigators:

Jeffrey Kopp, MD, Captain
Principal Investigator
jeffreyk@intra.niddk.nih.gov

To make an appointment in the Nephrology Clinic, please contact:

Research Coordinator & Study Contact:
Evelyn Castro-Rubio
castrorubioem@niddk.nih.gov

University of Michigan

University of Michigan
Ann Arbor, MI

University of Michigan - Department of Nephrology/Internal Medicine
1150 W. Medical Center Dr.
Ann Arbor, MI 48109-5676
Phone: 1-877-9-NEPTUNE
E-mail: NEPTUNE-Study@umich.edu

Matthias Kretzler, M.D.
NEPTUNE Principal Investigator, University of Michigan Professor, Internal Medicine

Debbie Gipson, M.D.
Co-Investigator, University of Michigan Associate Professor

Tina Mainieri, MA
NEPTUNE Project Manager

To contact this site for information related to NEPTUNE:

Chrysta Lienczewski
Clinical Research Project Manager

Amanda Williams (adult)
Clinical Subjects Coordinator
amwi@med.umich.edu

Renee Pitter (pediatric)
Clinical Subjects Coordinator
raltrine@med.umich.edu

About Us

The University of Michigan, Divisions of Internal Medicine Nephrology and Pediatric Nephrology are internationally recognized for the excellence of clinical care, and its rich and diverse education and research programs. Faculty in the divisions practice and teach optimal care for patients with a broad spectrum of kidney diseases at all stages. In addition, faculty members are actively involved in high-quality basic science, outcomes and clinical research aimed at better treatment as well as prevention of kidney-related health issues.

The University of Michigan is a unique environment for healthcare and scientific discovery on behalf of individuals with nephrotic syndrome. Available services include:

  • Glomerular Disease Clinic for Adults with nephrotic syndrome, FSGS, Minimal Change Disease and Membranous Nephropathy
  • Pediatric Nephrology Clinic for Children with nephrotic syndrome, FSGS, Minimal Change Disease and Membranous Nephropathy
  • Nephrotic syndrome research program including the lead for the national Nephrotic Syndrome Study Network (NEPTUNE), basic science research of the molecular mechanism s of nephrotic syndrome, genetic causes of nephrotic syndrome, clinical trials for the evaluation of therapies for nephrotic syndrome and FSGS management and patient outcome research.

The University of Michigan is excited to collaborate with investigators from other internationally recognized clinical centers in order to better understand nephrotic syndrome.

Links

The University of Michigan Nephrology Home Page

http://www.med.umich.edu/pediatrics/division/nephro/

Mayo Clinic

Mayo Clinic
Rochester, MN

Division of Nephrology & Hypertension
Mayo Clinic, 200 First Street SW
Rochester, MN 55905
Phone: 507-266-1047 or 507-255-0231

Investigators:

Fernando Fervenza, MD, PhD
Principal Investigator
fervenza.fernando@mayo.edu

Marie Hogan, MD, PhD
Co-investigator
hogan.marie@mayo.edu

John Lieske, MD
Co-investigator
lieske.john@mayo.edu

For information related to NEPTUNE, contact Research Coordinators listed below:

Vladimir Chernitskiy 
Research Coordinator
chernitskiy.vladimir@mayo.edu

About Us

The Mayo Clinic Division of Nephrology was established in 1963. The combined Division of Nephrology and Hypertension is now comprised of 39 faculty members and is one of the world’s largest groups dedicated to the study of the kidney, hypertension, and the treatment of patients with renal diseases and hypertension. The Mayo Clinic Division of Nephrology and Hypertension was ranked first nationally in the 2010, 2011, 2013, 2014, and 2015 US News and World Reports surveys, and a close second in 2012.

The Mayo Nephrology Collaborative Group (MNCG) is a consortium of nephrologists including Mayo Clinic Rochester, Jacksonville, and Scottsdale, and clinical and academic nephrologists located across the United States interested in developing and conducting prospective studies aimed at treating patients with renal parenchymal diseases. Established in 1988 by Dr. James V. Donadio Jr. and collaborators, the consortium has grown to now encompass 30 clinical centers and involves the participation of over 100 physicians and coordinators who are seeing the vast majority of patients with parenchymal renal diseases early in the course of illness, at a time when promising new therapies may exert their greatest influence.

The members of the MNCG believe strongly that clinical research goes hand in hand with our roles as clinicians and educators, and that this research is crucial for developing new therapies for patients with renal parenchymal diseases and have more than 10 clinical studies and disease registries. MNCG members are instrumental in design and leading of clinical trials in glomerular disease and other renal diseases and participate in several NIH sponsored multicenter collaborative initiatives in glomerular disease, other renal diseases and translation of new diagnostic and prognostic tests into clinical practice. In addition, the work of the MNCG leads to the rapid diffusion of new discoveries because of the number of practices it affects. Both from the intra- and extramural point of view, the role of the clinical research conducted by the MNCG, has contributed to better patient care, and has served an educator to the nephrology community worldwide through its publications.

Links

Mayo Nephrology Collaborative Group (MNCG) Clinical Trials

Children’s Mercy Hospital
Kansas City, MO

Children's Mercy Hospital
2401 Gillham Road
Kansas City, MO 64108

Investigators:

Tarak Srivastava, MD
Principal Investigator
tsrivastava@cmh.edu

For information related to NEPTUNE, contact Research Coordinators listed below:

Amy Garrett, RN
agarrett@cmh.edu

Janelle Jennings, RN
jjennings@cmh.edu

To contact this site for information related to NEPTUNE:

Amy Garrett
agarrett@cmh.edu
Phone: 816-234-3891

Links

www.childrensmercy.org

Cohen Children’s Medical Center of New York, North Shore-Long Island Jewish Health System

Cohen Children’s Medical Center of New York, North Shore-Long Island Jewish Health System
New Hyde Park, NY

Pediatric Nephrology
269-01 76th Avenue
New Hyde Park, NY 11040
718-470-3491

Investigators:

Christine Sethna, MD, EdM
Principal Investigator
csethna@nshs.edu

For information related to NEPTUNE, contact researcher coordinators listed below.

Lulette Infante, RN, BSN, CPON
linfante@nshs.edu
Phone: (718) 470-3423

About Us

A truly unique facility, Cohen Children's Medical Center is dedicated exclusively to the care of children and committed to providing the most sophisticated, state-of-the-art care in all major clinical areas. Family centered care is the core of our mission. Our discoveries, advancements and achievements over the years have earned us recognition and nationally-ranked as one the nation's preeminent children’s hospitals.

Links

Cohen Children’s Medical Center of New York

Columbia University Medical Center

Columbia University Medical Center
New York, NY

Nephrology
Irving Pavilion
161 Fort Washington Ave., Room 202
New York, NY 10032
Phone: 212-305-0320

Investigators:

Gerald B. Appel, MD
Principal Investigator

Andrew Bomback, MD, MPH
Co-Investigator
asb68@columbia.edu

For information related to NEPTUNE, contact researcher coordinator listed below.

Michael Toledo
mt3013@columbia.edu

Montefiore Medical Center

Montefiore Medical Center
Bronx, NY

The Children’s Hospital at Montefiore
Division of Pediatric Nephrology
3415 Bainbridge Avenue
Bronx, NY 10467

Investigators:

Frederick Kaskel, MD
Principal Investigator
fkaskel@montefiore.org

Michele H. Mokrzycki, MD MS
Co-Investigator
mmokrzyc@montefiore.org

For information related to NEPTUNE, contact researcher coordinator listed below.

Patricia Flynn
pflynn@montefiore.org
Phone: 718-655-1120

New York University Medical Center

New York University Medical Center
New York City, NY

Division of Nephrology
530 First Avenue, SK-9U
New York City, NY 10016
Phone: 212-263-5851

Contact Information:

Investigators:

Olga Zhdanova, MD
Principal Investigator
Olga.zhdanova@nyumc.org

Howard Trachtman, MD
Co-investigator
Howard.trachtman@nyumc.org

To make an appointment in the Nephrology Clinic, please contact:

Adult: Frank Modersitzki, MPH
Frank.Modersitzki@nyumc.org

Suzanne Vento
Suzanne.vento@nyumc.org
Phone: 646-501-2665

University of North Carolina

University of North Carolina
Chapel Hill, NC

Nephrology Division
UNC Kidney Center
CB 7155, Burnett-Womack Bldg.
Chapel Hill, NC 27599

Investigators:

Patrick Nachman, M.D., Nephrologist
Principal Investigator, Professor

Keisha Gibson, M.D., MPH, Pediatric Nephrologist
Co-Investigator, Assistant Professor
Keisha_gibson@med.unc.edu

For information related to NEPTUNE, contact researcher coordinators listed below.

Research Coordinators:
Joy Johnson
jrjohnso@med.unc.edu

Sandy Grubbs
Sandra_grubbs@med.unc.edu
Phone: 1-919-966-2561 ext 245

Links

UNC Kidney Center

 

Wake Forest University
Winston-Salem, NC

Medical Center Boulevard
Richard H Dean Biomedical Building
Winston-Salem, NC 27157

Investigators:

Barry Freedman, MD
bfreedma@wakehealth.edu

Jen-Jar Lin, MD
jelin@wakehealth.edu 

For information related to NEPTUNE, contact researcher coordinators listed below.

Research Coordinators:
Mitzie Spainhour
mhspain@wakehealth.edu

Stefanie Gray
stefgray@wakehealth.edu
Phone: 336-716-5896

Case Western Reserve University

Case Western Reserve University
Cleveland, OH

Case Western Reserve University
Rammelkamp Center for Research and Education
MetroHealth System Campus
2500 MetroHealth Drive R415
Cleveland, OH 44109-1998
Phone: 216-778-4993

Contact Information:

Investigators:

John R. Sedor, M.D.
MetroHealth Research Endowment Professor
jrs4@case.edu

Katherine Dell, M.D.
Cleveland Clinic Children’s
Associate Professor of Pediatrics, CWRU
Katherine.Dell@case.edu

To contact this site for information related to NEPTUNE:

Adult Patients:

Metro Health Medical Center
Phone: 216-778-4993

Pediatric Patients:

Katherine Dell, M.D.
Cleveland Clinic Children’s
Phone: 216-444-6123

Research Coordinator:

Marleen Schachere, R.N., B.S.N.
Rammelkamp Center for Research and Education
MetroHealth System
2500 MetroHealth Drive
Cleveland, OH 44109-1998

Stacy Payne and Megan Villareal
Cleveland Clinic Clinical Research Unit
9500 Euclid Drive, M-51
Cleveland, OH 44195
Phone: 216-636-5247

Study Contact:

Marleen Schachere
Phone: 216-778-8473
E-mail: mrs27@case.edu

About Us

CWRU Center for the Study of Kidney Disease and Biology

The mission of the CWRU Kidney Disease Research Center is to accelerate discovery and its translation for treatment and cure of kidney disease. The faculty is an accomplished and highly interactive group of physicians and M.D. & Ph.D. investigators in the adult or pediatric Divisions of Nephrology or Pediatric Nephrology in CWRU-affiliated hospitals and 17 other clinical and basic scientists in other Departments of the CWRU School of Medicine, all of whom actively study kidney biology and disease. Research interests of the faculty include glomerular development and disease, epithelial cell biology and ion transport, cystic kidney disease, genetic epidemiology, health services research and clinical trials. The clinical faculty include nationally recognized experts on nephrotic syndrome and related kidney diseases. The Center participates in clinical trials of new therapies for glomerular diseases.

Participating Clinical Centers:

  • Cleveland Clinic Foundation/Cleveland Clinic Children’s
  • MetroHealth System Campus-CWRU
  • University Hospitals Case Medical Center
  • University Hospitals Rainbow Babies & Children’s Hospital
University of Toronto

University of Toronto
Toronto, ON

University Health Network (UHN)
Toronto General Hospital
NCSB 11C-1256
585 University Ave
Toronto, ON
M5G 2N2
CANADA

Sunnybrook Health Sciences Centre (SHSC)
2075 Bayview Ave - A139
Toronto, ON
M4N 3M5
CANADA

Contact Information:

Investigators:

Dr. Daniel C. Cattran, MD, FRCP(C)
Principal Investigator
E-mail: daniel.cattran@uhn.ca

Dr. Heather N. Reich, MD, PhD, FRCP(C)
Co-investigator
E-mail: Heather.Reich@uhn.ca

Dr. Carmen Avila-Casado MD
Pathologist
E-mail: mcavilacasado@gmail.com

Dr. Rohan John
Pathologist
E-mail: Rohan.John@uhn.ca

Sunnybrook Hospital
Dr. Michelle A. Hladunewich MD MSc FRCP(C)
Co-investigator (Sunnybrook Site)
E-mail: Michelle.Hladunewich@sunnybrook.ca

To make an appointment in the Nephrology Clinic, please contact:

UHN
Phone: 416-340-4187

Research Coordinator:

Paul Ling
c/o The Toronto Glomerulonephritis Registry
12EN-228, 200 Elizabeth Street
Toronto, Ontario M5G 2C4
CANADA

Study Contact:

Phone: 416-340-4800 ext. 3514
E-mail: pling@uhnresearch.ca

SHSC
Phone: 416-480-5954

Research Coordinator:

Anna Rogowsky
c/o Sunnybrook Health Sciences Centre
2075 Bayview Avenue – M4 111bt
Toronto, Ontario M4N 3M54
CANADA

Study Contact:

Phone: 416-480-6100 ext. 87714
E-mail: anna.rogowsky@sunnybrook.ca

About Us

The Toronto Glomerulonephritis Registry has provided the international nephrology community with important insights into the natural history of glomerulonephritis and the nephrotic syndrome. Our centre has designed and conducted seminal clinical trials of emerging treatments for glomerular-based kidney diseases. Our multi-disciplinary team includes highly specialized clinicians dedicated to treating patients with glomerulonephritis, as well as clinician-researchers focusing on epidemiologic outcomes and translational research in glomerulonephritis. In addition, our centre is dedicated to training new nephrologists and researchers from around the world.

Involvement in the Neptune study is a natural extension of our long-standing efforts to improve the understanding and treatment of patients with glomerulonephritis. Neptune is closely integrated into our ongoing studies of clinical, pathologic, and molecular predictors of progressive glomerular based kidney disease. We view Neptune as a unique and long-awaited opportunity to collaborate with centers across North America with mutual interest to ours and to share knowledge about the nephrotic syndrome and provide a platform for patients to access the latest diagnostic and treatment opportunities.

Temple University

Temple University
Philadelphia, PA

Nephrology
3440 N. Broad St. Kresge Bldg. West, Suite 100
Philadelphia, PA 19140
Phone: 215-707-0744

Contact Information:

Investigators:

Crystal Gadegbeku, MD
Principal Investigator
Crystal.gadegbeku@tuhs.temple.edu

Duncan Johnstone, MD, PhD
Co-investigator
Duncan.Johnstone@tuhs.temple.edu

For more information about the NEPTUNE study, please contact:

Zoe Pfeffer
Research Coordinator
zoe.pfeffer@tuhs.temple.edu

Links

Temple University Lewis Katz School of Medicine

University of Pennsylvania

University of Pennsylvania
Philadelphia, PA

Renal, Electrolyte, and Hypertension Division
410 E. Hill Pavilion
380 S. University Avenue
Philadelphia, PA 19104
Phone: 215-573-1831

Investigators:

Lawrence Holzman, MD
Principal Investigator, Professor

Kevin Meyers, MBBCh
Co-investigator
meyersk@email.chop.edu

For information related to NEPTUNE, contact researcher coordinators listed below

Research Coordinators & Study Contact:
Radhakrishna Kallem
Krishna.kallem@uphs.upenn.edu
Phone: 484-358-0315

University of Texas Southwestern Medical Center

University of Texas Southwestern Medical Center
Dallas, TX

Division of Nephrology
UT Southwestern Medical Center
5323 Harry Hines Blvd.
Dallas, TX 75390-8516

Investigators:

Kamalanathan K. Sambandam, MD
Principal Investigator
Assistant Professor

Elizabeth Brown
Co-investigator

For information related to NEPTUNE, contact researcher coordinators listed below

Adult Patients Contact:

Research Coordinator & Study Contact:
Natalie Johnson
Tel: 214-645-8263
E-mail: natalie.johnson@UTSouthwestern.edu

About Us

The Nephrology Division at the University of Texas Southwestern (UTSW) Medical Center offers a wide breath of clinical experience in the evaluation and management of kidney disease. Such broad experience is provided in the context of our major teaching hospitals: Dallas County Parkland Hospital, University Hospitals Clement’s and Zale Lipshy, Children’s Medical Center, and the Veteran Affairs North Texas Health Care System. In addition to our commitment to clinical care, the UTSW Nephrology Division conducts cutting-edge basic science and patient-oriented research. The overall goal of our research program is the acquisition of new knowledge that will advance our understanding of kidney biology and the pathogenesis and treatment of renal disease.

Links

UT Southwestern Medical Center Division of Nephrology

Parkland Hospital

UT Southwestern Medical Center William P. Clements Jr. University Hospital

Children’s Health

University of Washington

University of Washington
Seattle, WA

University of Washington Medical Center
Dr. Peter J. Nelson, MD
Principal Investigator
Division of Nephrology, University of Washington

Dr. J. Ashley Jefferson, MD
Co-Investigator
Division of Nephrology, University of Washington

Research Coordinator and Study Contact:
Karina Klepach
kkhorne@nephrology.washington.edu

Seattle Children’s Hospital
Dr. Sangeeta Hingorani, MD
Principal Investigator

Research Coordinator and Study Contact:
Jenny Skytta 
jennifer.skytta@seattlechildrens.org

Providence Sacred Heart Medical Center & Children’s Hospital
Dr. Katherine Tuttle, MD
Principle Investigator

Research Coordinator and Study Contact:
Ann Cooper
ann.cooper@providence.org

About Us

The University of Washington Medical Center, Seattle Children’s Hospital, and Providence Sacred Heart Medical Center & Children’s Hospital are internationally recognized for cutting-edge research and excellence of care for adult and pediatric patients with renal diseases. Our team of investigators in the United States Pacific Northwest join efforts in NEPTUNE to better understand, prevent, and treat nephrotic renal diseases.