The experts of The Porphyrias Consortium and the American Porphyria Foundation promote treating your health with the respect it deserves, and recommends looking to reliable sources for your medical information. Websites that are backed by scientific research are good places to start. Some suggestions include:
American Porphyria Foundation
Annals of Internal Medicine
APF drug database
Centers for Disease Control (CDC)
Criver’s Online Metabolic and Molecular Bases of Inherited Disease
European Porphyria Initiative
General Health information from NIH
Genetics Home Reference
Learn Genetics by the Genetic Science Learning Center
MedlinePlus
Merck Manual of Diagnosis and Therapy
National Institutes of Health (NIH)
Online Mendelian Inheritance in Man
PubMed
U.S. Food & Drug Administration
University of Capetown Porphyria Center
UpToDate Porphyrias Overview
The following are some references to help you understand the medical terminology that you might find when reading and researching the porphyrias:
Genetics Glossary from NIH
Merriam-Webster Medical Dictionary