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Rett Syndrome
The Rett syndrome, MECP2 Duplication, and Rett-Related Disorders (RTT) Consortium is a newly developed RDCRN consortium extended from the previous activities of the Rett Syndrome Natural History Study.

You (or your child) are invited to join the international RDCRN Contact Registry for patients!

The RDCRN Contact Registry is a method by which patients with rare diseases and their family members can register with the RDCRN in order to be contacted about clinical research opportunities and receive updates on the progress of the research projects. The RDCRN Contact Registry is anonymous and free of charge.

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Find A Participating Clinical Center Near You!
Thinking about participating in a clinical study? See if one of our many locations across the United States is near you!

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We Need You!
Participants make it possible for researchers to find new treatments, create new studies, and work for the improvement of all lives affected by rare diseases.

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Through Research We Can:

  • • Make Advances in Medicine

  • • Discover New Treatments

  • • Lessen the Burden of Illness

  • • Find Cures