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Join The RDCRN RKSC Contact Registry!

Research offers no guarantees, but research cannot move forward without your help. Every active role a patient takes may possibly play a part in discovering new groundbreaking research and finding new treatments.

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Please note that the RDCRN RKSC Contact Registry is different from the RKSC disease registry which contains much more information and is essential to advance our knowledge of your stone disease. We sincerely hope that you will participate in both.
Why Is My Participation Important?

Maintaining the Relationship between Patients and Researchers is Vital!

Individuals who participate in research make it possible for researchers to find new treatments and new knowledge to improve the health and quality of life for patients with rare diseases. By joining the Rare Kidney Stone Consortium (RKSC) Registry, you will be contributing to the research of the Rare Diseases Clinical Research Network.

Participation in Research Makes it Possible for Researchers to:

  • • Provide new knowledge for the best possible care to patients affected by rare diseases.

  • • Improve methods in studying the disease you are affected by.

  • • Achieve deeper understanding of your disease and its causes.

  • • Find new treatments.

  • • Create new studies.

Find A Participating Clinical Center Near You!
Thinking about participating in a clinical study? See if one of our locations is near you!

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