The Consortium facilitates cooperative exchange of information and resources among investigators, clinicians, and patients, and researchers in order to improve care and outcomes for patients with rare stone diseases. The consortium promotes ready availability of diagnostic testing, pooling of clinical experiences, and availability of tissue banks in order to advance the science. Our goals are to:
- Establish and expand registries and collaborate with patient organizations for the rapid dissemination of knowledge
- Stimulate generation of testable hypotheses regarding mechanisms of renal injury in these diseases through registry findings, tissue resources, and pilot projects
- Develop cohorts of well-characterized patients for future clinical studies
- Attract and train investigators to rare diseases research in nephrology
You can help too! There are several ways that you can become involved with RKSC. You may join our contact registry, participate in clinical studies, and join associated patient advocacy groups.