Patient Support and Advocacy Groups

Patient advocacy groups specializing in kidney disease are here to help you. They are devoted to providing support, resources and services for patients and families. Join these groups to help yourself, your family, and other patients.


Oxalosis and Hyperoxaluria Foundation

Kim Hollander, Executive Director
201 East 19th Street, Suite 12E
New York, NY 10003

International Cystinuria Foundation

Matthew Lewis, President
PO Box 271004
Fort Collins, CO 80527-1004

Cystinuria Support Network

Sue Holden, Moderator

Lowe Syndrome Association

Debbie Jacobs, President
18919 Voss Road
Dallas, TX 75287

APRT Deficiency Support Network

Robin NeJame
US Patient Representative