Patient Support and Advocacy Groups

Patient advocacy groups specializing in rare lung diseases are here to help you. They are devoted to providing support, resources and services for patients and families. Join these groups to help yourself, your family, and other patients.


The Lymphangioleiomyomatosis (LAM) Foundation:

www.thelamfoundation.org


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The Pulmonary Alveolar Proteinosis (PAP) Foundation:

www.papfoundation.org


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The Hermansky-Pudlak Syndrome (HPS) Network Inc.:

www.hpsnetwork.org


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Alpha-1 Foundation:

www.alpha1.org


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Histiocytosis Association:

www.histio.org


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Sjogren’s Syndrome Foundation:

www.sjogrens.org


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Lymphangiomatosis and Gorham’s Disease Alliance:

www.lgdalliance.org


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Children’s Interstitial and Diffuse Lung Disease (chILD) Foundation:

www.child-foundation.com
 
Patient Advocacy