United Leukodystrophy Foundation (ULF)

ulf.org/news

Global Foundation for Peroxisomal Disorders (GFPD)

www.thegfpd.org/events

Smith-Lemli-Opitz Syndrome/RSH Foundation

www.smithlemliopitz.org/events

Auto Inflammatory Alliance

www.nomidalliance.org/news.php

Foundation for Ichthyosis and Related Skin Types (FIRST)

www.firstskinfoundation.org/news-events

Sitosterolemia Foundation

www.sitosterolemiafoundation.org/events-