ulf.org/news
www.thegfpd.org/events
www.smithlemliopitz.org/events
www.nomidalliance.org/news.php
www.firstskinfoundation.org/news-events
www.sitosterolemiafoundation.org/events-
Autoinflammatory Alliance: (coming soon)
FIRST:
SLO/RSH Foundation: (coming soon)
Rare Disease Day
OregonLive.com: OHSU part of network established to help those with rare disorders