Through research, education and partnership with patient advocates and other key stakeholders the UCDC hopes to improve the quality of life for all who are suffering from urea cycle disorders. The UCDC works closely with the National Urea Cycle Disorders Foundation patient advocacy group to include patient input in determining the direction and nature of the consortium’s research program. Participants in research studies make it possible for researchers to find new treatments, conduct new studies, and work for the improvement of all lives affected by rare diseases. Because urea cycle disorders are rare disorders, the active involvement of patients, their families, and advocacy groups is the key component in any progress towards a better future for those with urea cycle disorders.