Please Note: The Rare Diseases Clinical Research Network will make every effort to enroll all the patients we can, but we cannot make any guarantees that we will be able to enroll everyone in a particular study who wants to participate.
Other urea cycle disorders research conducted outside of the UCDC
ClinicalTrials.gov, a service of the U.S. National Institues of Health, is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world. Patients and families can use the website to search for clinical studies for a particular disorder or in a particular geographic region. It can also be used to learn more about clinical studies. Researchers use the site to register studies and to share results. To find other clinical studies, type "urea cycle disorders" and/or your specific disorder (e.g. OTC, ornithine transcarbamylase deficiency, arginanse deficiency, etc.) in the "Search for Studies" field.