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If you are interested in referring any of your patients to UCDC studies, please contact:

Jennifer Seminara, MPH, CCRP
Clinical Research Program Manager
Urea Cycle Disorders Consortium

Children’s Research Institute
Children’s National Health System
111 Michigan Avenue, NW
Washington, DC 20010

Phone: 202-306-6489


Find a clinical site near you.


UCDC Contact Registry

The Rare Diseases Clinical Research Network (RDCRN) Urea Cycle Disorders Consortium (UCDC) Contact Registry is a way for patients with urea cycle disorders and their family members to learn about UCDC research studies they may be able to join. Participation is completely voluntary. There is no cost to join the Contact Registry.

Click here for more information or print a Contact Registry information form(.pdf) that you can give to your patients.