Useful Links and Information

The links and resources outlined here are provided to help patients, researchers, and health care providers gain access to information about urea cycle disorders. It is neither within the purview, nor the intention of the UCDC to endorse information contained within these links.

 

Patient Resources

National Urea Cycle Disorders Foundation (NUCDF)
The National Urea Cycle Disorders Foundation is a non-profit organization dedicated to the identification, treatment and cure of urea cycle disorders. NUCDF is a nationally recognized resource of information and education for families and healthcare professionals. The NUCDF is an integral partner of the Urea Cycle Disorders Consortium.

 

Information about Urea Cycle Disorders for Patients and Families

Urea Cycle Disorders - A Guide for Patients, Parents and Families An easy to understand information resource from the European registry and network for Intoxication type Metabolic Diseases (EIMD)

Urea Cycle Disorders and Organic Acidurias for Younger People An easy to understand information resource from the European registry and network for Intoxication type Metabolic Diseases (EIMD)

Information regarding urea cycle disorders from the National Institutes of Health Generic and Rare Disease Information Center