Rare Disease Day

Rare Disease Day is a worldwide event that takes place on or near the last day in February each year to raise public awareness of rare diseases and the importance of research on these diseases. Each year, NCATS and other NIH Institutions and Centers sponsor Rare Disease Day at NIH as part of this global observance.

Admission to Rare Disease Day at NIH is free and open to the public in person or via webcast. For more information on how to register, view the agenda, past photos, or webcast, please visit the Rare Disease Day at NIH webpage.

Industry Collaboration

The Rare Diseases Clinical Research Network is committed to fostering third-party partnerships that include collaboration with the biopharmaceutical industry. All such partnerships should advance the overall Network objectives of studying rare disease, including understanding the clinical epidemiology and pathophysiology, accelerating the development of therapies and management tools, and improving the lives of individuals.

RDCRN Principles for Third Party Collaboration: The goal of this document is to outline key principles that help the RDCRN achieve this goal. For purposes of this document “third-parties” are individuals or entities that are not already recognized as part of the Consortium.