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Past Events

2024

The Dystonia Coalition Webinar 2024

2023

2022

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       <h4>
           Day One
       </h4>
       <ul>
           <li>
               Jinnah: Welcome & Goals
           </li>
           <li>
               Comella: Botulinum toxins
           </li>
           <li>
               Jinnah: Oral medications
           </li>
           <li>
               Shukla: Surgical interventions
           </li>
           <li>
               Defazio: Rating scales
           </li>
           <li>
               Peterson: Objective measures
           </li>
           <li>
               Richardson: Add on therapies
           </li>
           <li>
               Q&A
           </li>
       </ul>
   </div>
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       <h4>
           Day Two
       </h4>
       <ul>
           <li>
               Jinnah: Welcoming remarks
           </li>
           <li>
               Jinnah: PPP
           </li>
           <li>
               Cruchaga: PPP awardee
           </li>
           <li>
               Comella: CDA
           </li>
           <li>
               Parlakturk: CDA awardee
           </li>
           <li>
               Hieshetter & Kuman: PAG
           </li>
           <li>
               Jinnah: Summary
           </li>
           <li>
               Q&A
           </li>
       </ul>
   </div>
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2021

2020

The DC has been funded for another five years (2019-2024)!

2016

Meeting Agenda: Download agenda [pdf]

2014

2013

2012

2010

  • Meeting Agenda
  • Group Photo
  • Dystonia Coalition Provides Two More Career Development Awards:
    • Mateusz Zurowski, MD, MSc, FRCPC: Psychiatric Assessments Of Patients With Cervical Dystonia, Funded In Partnership With The DMRF
    • Alberto Espay, MD, MSc: Sensory And Emotional Processing In Psychogenic Dystonia: A Functional Magnetic Resonance Imaging Study, Funded In Partnership With The DMRF
  • Dystonia Coalition Awards Two More Pilot Studies:
    • Kailash Bhatia, MD, DM, FRCP: DYT6 Dystonia – A Window To The Mechanisms Of Primary Dystonia?
    • Emmanuel Roze, MD, PhD: Cerebellum And Cortical Plasticity: The Case Of Focal Dystonia

2009

  • Meeting Agenda
  • Group Photo
  • First Career Development Award Goes To Maren Carbon-Corell To Develop A Marker For Dystonia Based On FMRI Patterns In The Brain, Funded In Partnership With The DMRF
  • Dystonia Coalition Awards First Three Pilot Studies:
    • Mark LeDoux, MD, PhD: THAP1 Sequence Variants In Dystonia 
    • Giovanni DeFazio, MD, PhD: Development And Validation Of Clinical Diagnostic Guidelines And A Novel Severity Rating Scale For Primary Blepharospasm, Funded In Partnership With The BEBRF
    • Steve Frucht, MD: A Multicenter, Exploratory, Double Blind, Placebo Controlled, Dose Escalation Study Of Sodium Oxybate As A Symptomatic Treatment For Idiopathic Cervical Dystonia, Funded In Partnership With The NSTA