Dr. Rothenberg received the Paul Ehrlich Lectureship Award Anonymous (not verified) Thu, 02/28/2019 - 09:33
Dr. Rothenberg

Dr. Rothenberg, the Principal Investigator for CEGIR, has been awarded the highest honor bestowed by the International Eosinophil Society for his major contributions to the advancement of our understanding of the eosinophil.

Primary Immune Deficiency Treatment Consortium (PIDTC) Anonymous (not verified) Wed, 02/27/2019 - 14:46
PIDTC
The PIDTC conducts multi-center studies of primary immune deficiency (PID) diseases and aims to expand the understanding and improve treatments and outcomes for patients with rare PIDs.
Brittle Bone Disorders Consortium pioneers Osteogenesis Imperfecta research and treatment Anonymous (not verified) Wed, 02/27/2019 - 14:07
BBD

Through research, the BBDC is discovering new biomarkers of the disease that will lead to a deeper understanding of underlying pathophysiology of OI as well as assessing response to therapies

Working Together to Find Answers: An Example of Patient Advocacy Group Involvement Anonymous (not verified) Sat, 06/04/2016 - 10:27

The American Partnership for Eosinophilic Disorders (APFED) is one of several Patient Advocacy Groups collaborating with the Consortium of Eosinophilic Gastrointestinal Disease Researchers to conduct research. APFED provides support in many ways, such as engaging the patient community, participating in committee work, and even pledging supplement funding to support future research.

RDCRN Investigators and Patient Advocacy Groups – A Partnership Anonymous (not verified) Fri, 06/03/2016 - 10:25

An article published in Orphanet Journal of Rare Diseases shows the integral partnership between RDCRN investigators and the associated patient advocacy group members, as well as how this partnership has enhanced recruitment for protocols, study design, and consortium training programs.