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  • Our Research
    • Find Diseases We Study
    • Rare Diseases Research Groups & Studies
    • Publications
  • For Patients
    • Patient Organizations
    • Resources for Patients and Families
    • Coalition of Patient Advocacy Groups (CPAG)
    • CPAG Steering Committee
    • Webinar Series
      • Navigating Rare Disease Clinical Trials
      • Rare Advocacy Resource Exchange
  • For Researchers
    • Resources for Researchers
    • Clinical Research Training Resources
    • RDCRN Conference on Clinical Research for Rare Diseases (CCRRD)
      • Resources From Past CCRRD Conferences
    • More Training Opportunities
    • NIH Data Sharing
    • Other Rare Disease Initiatives
  • News
    • Latest News
    • Impact Stories
    • Spotlight Newsletter
    • Conference on Clinical Research for Rare Diseases
  • COVID-19 Research
    • COVID-19 Research News
    • Impacts Survey
    • Initial Impacts Survey Results
  • Contact Registry
  • About Us
    • About Us
    • Contact Us

coronavirus

An estimated 30 million people in the United States are affected by rare diseases. Complete an online survey from the NIH-funded Rare Diseases Clinical Research Network to help researchers understand the impacts of COVID-19 on the rare disease community.
Research Survey for Rare Disease Patients and Their Families About Impacts of COVID-19
May 08, 2020

Rare disease patients or their caregivers are invited to complete a 20-minute online survey from home about the ways the novel coronavirus pandemic is impacting people with rare diseases and their families.

COVID-19
coronavirus
Subscribe to coronavirus

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The Rare Diseases Clinical Research Network (RDCRN) is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). The RDCRN websites are hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke (NINDS) under grant number TR002818.