Network Steering Committee
The RDCRN Network Steering Committee oversees governance and decision making for trans-network policies and procedures. Its membership includes the principal investigators of the 20 research consortia, leadership of the Coalition of Patient Advocacy Groups (CPAG) and the DMCC, and the program officer based in the NCATS Division of Rare Diseases Research Innovation (DRDRI).
2023 Leadership

Marc Rothenberg, MD, PhD, Chair
Director, Division of Allergy and Immunology, Cincinnati Children’s Hospital Medical Center
Principal Investigator, Consortium of Eosinophilic Gastrointestinal Disease Researchers

David Kimberlin, MD, Co-Chair
Co-Director, Division of Pediatric Infectious Diseases, University of Alabama at Birmingham
Principal Investigator, Congenital and Perinatal Infections Consortium

Eva Morava-Kozicz, MD, PhD, Co-Chair
Professor of Medical Genetics, Department of Clinical Genomics, Mayo Clinic
Principal Investigator, Frontiers in Congenital Disorders of Glycosylation Consortium