Network Steering Committee

The RDCRN Network Steering Committee oversees governance and decision making for trans-network policies and procedures. Its membership includes the principal investigators of the 20 research consortia, leadership of the Coalition of Patient Advocacy Groups (CPAG) and the DMCC, and the program officer based in the NCATS Division of Rare Diseases Research Innovation (DRDRI).

2022 Leadership

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Andrea Gropman, MD, Network Steering Committee Chair

Andrea Gropman, MD, Chair

Division Chief, Neurodevelopmental Pediatrics and Neurogenetics, Children’s National Medical Center

Principal Investigator, Urea Cycle Disorders Consortium

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Marc Rothenberg, MD, PhD, Network Steering Committee Co-Chair

Marc Rothenberg, MD, PhD, Co-Chair

Director, Division of Allergy and Immunology, Cincinnati Children’s Hospital Medical Center

Principal Investigator, Consortium of Eosinophilic Gastrointestinal Disease Researchers

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David Kimberlin, MD, Network Steering Committee, Second Co-Chair

David Kimberlin, MD, Second Co-Chair

Co-Director, Division of Pediatric Infectious Diseases, University of Alabama at Birmingham

Principal Investigator, Congenital and Perinatal Infections Consortium