The RDCRN Coalition of Patient Advocacy Groups is hosting a webinar series entitled, “Rare Advocacy Resource Exchange.” This webinar series spotlights resources available to help patient advocacy groups accomplish their work. Please view the archived recordings below and check back periodically for new postings:

 

CPAG Webinar: Research, Rare Disease Day & More: Catching Up with NORD Feb. 17, 2022 from RDCRN on YouTube.

 


CPAG Webinar: Genetic Alliance "Don't Accept a Seat at the Table, Own the Table!" March 24, 2022 from RDCRN on YouTube.

 


CPAG Webinar: Getting to Know the EveryLife Foundation April 12, 2022 from RDCRN on YouTube.

 


CPAG Webinar: Get to Know Global Genes May 12, 2022 from RDCRN on YouTube.

 


CPAG Webinar: The Chan Zuckerberg Initiative's Rare As One Project June 16, 2022 from RDCRN on YouTube.