Newsletter of the Rare Diseases Clinical Research Network, an initiative of ORDR, NCATS
Volume 7, Issue 1. Spring 2017

Spotlight on Rare Diseases
Newsletter of the NCATS Rare Diseases Clinical Research Network

Editor
Mustafa Sahin, MD, PhD
Boston Children's Hospital

 

Assistant Editors

Hannah Fitterman
University of South Florida

 

Editorial Board

Rashmi Gopal-Srivastava, PhD
Office of Rare Diseases Research (ORDR), National Center for Advancing Translational Sciences (NCATS)

Hyder Jinnah, MD, PhD
Emory University

Joyce Kullman
Vasculitis Foundation; RDCRN Coalition of Patient Advocacy Groups

David Robertson, MD
Vanderbilt University

Marc E. Rothenberg, MD, PhD
Cincinnati Children's Hospital Medical Center

Robert D. Steiner, MD
University of Wisconsin

Chester B. Whitley, PhD, MD
University of Minnesota

Feedback

The staff of Spotlight are enthusiastic about the potential of our new publication to enhance communication among those interested in treatment and cure of rare diseases. We are very interested in your thoughts about how Spotlight can be improved. If you have suggestions for future issues, please let us hear from you.
Please send us your comments.

The Rare Diseases Clinical Research Network (RDCRN) was established by the Office of Rare Diseases Research (ORDR), National Center for Advancing Translational Sciences (NCATS), National Institutes of Health (NIH) to develop research studies for rare diseases, and to encourage cooperative partnerships among researchers at over 400 clinical centers around the world. This increased cooperation may lead to discoveries that will help treat and perhaps prevent these rare diseases, as well as produce medical advances that will benefit the population in general. The RDCRN is comprised of a Data Management and Coordinating Center and 21 consortia studying over 200 rare diseases.

The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, National Center for Advancing Translational Sciences (ORDR, NCATS), is funded by ORDR, NCATS, NINDS, NIDDK, NICHD, NIAMS, NIAID, NIDCR, NHLBI, NIMH, and ODS.

The National Institutes of Health does not endorse or recommend any commercial products, processes, or services. The views expressed in written materials or publications do not necessarily reflect the official policies of the Department of Health and Human Services; nor does mention by trade names, commercial practices, or organizations imply endorsement by the U.S. Government.