Skip to main content
  • English
  • Español (España)
  • Español (America latina)
  • Français (Canadien)
  • Français (Européen)
  • Deutsch
  • Italiano

Main navigation

  • Rare Disease Information
    • Find A Disease
    • Rare Diseases Research Groups & Studies
    • Publications
  • Get Involved
    • RDCRN Contact Registry
    • Patient Organizations
  • Researchers
    • RDCRN Conference on Clinical Research for Rare Diseases (CCRRD)
      • Resources From Past CCRRD Conferences
    • RDCRN Training Opportunities
    • Other Rare Disease Initiatives
    • NIH Data Sharing
  • News
  • About Us
facebook twitter RDCRN Members Login
Stay Informed - Join The RDCRN Contact Registry
Login
Home
facebook twitter RDCRN Members Login
  • English
  • Español (España)
  • Español (America latina)
  • Français (Canadien)
  • Français (Européen)
  • Deutsch
  • Italiano
Stay Informed - Join The RDCRN Contact Registry
Login
  • Rare Disease Information
    • Find A Disease
    • Rare Diseases Research Groups & Studies
    • Publications
  • Get Involved
    • RDCRN Contact Registry
    • Patient Organizations
  • Researchers
    • RDCRN Conference on Clinical Research for Rare Diseases (CCRRD)
      • Resources From Past CCRRD Conferences
    • RDCRN Training Opportunities
    • Other Rare Disease Initiatives
    • NIH Data Sharing
  • News
  • About Us

RDCRN News

CCRRD 2018
RDCRN Conference on Clinical Research for Rare Diseases 2018
January 01, 2018

The Rare Diseases Clinical Research Network (RDCRN) is sponsoring the 5th Conference on Clinical Research for Rare Diseases (CCRRD) on Thursday, October 4, 2018 in Washington, D.C.

RDCRN News
For Researchers
Dr. Robert Desnick and Dr. Cynthia Tifft to Receive Rare Impact Awards
June 03, 2017

Robert Desnick, PhD, MD, and Cynthia Tifft, PhD, MD, have been chosen by the National Organization for Rare Disorders (NORD) to receive 2017 Rare Impact Awards.

For Researchers
RDCRN News
Unique Path to FDA Approval Following an RDCRN Trial
June 05, 2016

Investigators from the 'MILES' (Multicenter International LAM Efficacy of Sirolimus) trial recount the unique path it took seeking FDA review of their drug.

RDCRN News
Consortia News
For Researchers
Working Together to Find Answers: An Example of Patient Advocacy Group Involvement
June 04, 2016

The American Partnership for Eosinophilic Disorders (APFED) is one of several Patient Advocacy Groups collaborating with the Consortium of Eosinophilic Gastrointestinal Disease Researchers to conduct research. APFED provides support in many ways, such as engaging the patient community, participating in committee work, and even pledging supplement funding to support future research.

RDCRN News
Consortia News
For Patients
For Researchers
RDCRN Investigators and Patient Advocacy Groups – A Partnership
June 03, 2016

An article published in Orphanet Journal of Rare Diseases shows the integral partnership between RDCRN investigators and the associated patient advocacy group members, as well as how this partnership has enhanced recruitment for protocols, study design, and consortium training programs.

RDCRN News
For Researchers
For Patients
RDCRN Sponsored 4th Conference on Clinical Research for Rare Diseases
June 02, 2016

The Rare Diseases Clinical Research Network (RDCRN) sponsored the 4th Conference on Clinical Research for Rare Diseases (CCRRD) on Thursday, November 3, 2016 in Washington, D.C.

RDCRN News
For Researchers
RDCRN Joins Social Media
June 01, 2016

The RDCRN social media presence aims to increase awareness of rare diseases, as well as assist with protocol accrual and registrations for the RDCRN Contact Registry.

RDCRN News
For Patients
For Researchers
Rare Disease Research Training Program
January 03, 2016

The Certificate program is a 12 month series of in-person and webinar-based opportunities allowing for synchronous and asynchronous learning opportunities to better understand the practical skills required to succeed in rare disease clinical research.

RDCRN News
For Researchers
RDCRN Launches New Website to Better Serve Desktop and Mobile Users
January 02, 2016

The new website features a streamlined layout of page content and navigation - making it easier for users to search for rare diseases studied under the RDCRN, find information about the RDCRN studies, search for patient advocacy groups associated with the RDCRN, and join the RDCRN Contact Registry.

RDCRN News
For Patients
Selected Publications From RDCRN Consortia in 2015
January 01, 2016

A list of selected RDCRN publications.

RDCRN News
For Researchers

Pagination

  • 1
  • Next page ››
Subscribe to RDCRN News

Tags

For Patients
For Researchers
Consortia News
RDCRN News


Your participation makes a world of difference.
Learn How

Stay Up To Date With The Spotlight On Rare Diseases Newsletter

Subscribe

About Spotlight

Footer Bottom Links

  • Contact Us
  • Accessibility & Disclaimer
    • facebook
    • twitter
The Rare Diseases Clinical Research Network is an initiative of the Office of Rare Diseases Research. National Center for Advancing Translational Sciences (NCATS) funded through a collaboration between NCATS and the National Institutes of Health.
On