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  • Our Research
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  • For Patients
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    • CPAG Steering Committee
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  • For Researchers
    • Resources for Researchers
    • Clinical Research Training Resources
    • RDCRN Conference on Clinical Research for Rare Diseases (CCRRD)
      • Resources From Past CCRRD Conferences
    • More Training Opportunities
    • NIH Data Sharing
    • Other Rare Disease Initiatives
  • News
    • Latest News
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    • Spotlight Newsletter
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    • COVID-19 Research News
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    • Initial Impacts Survey Results
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Myasthenia Gravis Rare Disease Network

Headshot of Linda Kusner, PhD
Senior Researcher Spotlight: Linda Kusner Explores the Biology Behind Myasthenia Gravis
February 25, 2022

Linda Kusner, PhD, is a research professor of pharmacology, physiology, genomics, and precision medicine at the George Washington University School of Medicine and Health Sciences, as well as a member of the Myasthenia Gravis Rare Disease Network (MGNet). Her research focuses on the understanding of extraocular muscle physiology and response to disease, including myasthenia gravis (MG). Here, she shares her start in rare disease research, exciting discoveries, and future goals. 

Senior Researcher Spotlight
MGNet
Myasthenia Gravis Rare Disease Network
myasthenia gravis
Headshot of Felipe Polo-Wood
Patient Spotlight: Felipe Polo-Wood Forges Ahead with Myasthenia Gravis
February 25, 2022

Felipe Polo-Wood is an innovator—both in his work as an IT consultant and as a patient with myasthenia gravis (MG), a chronic autoimmune neuromuscular disease characterized by weakness of the skeletal muscles. Here, Felipe shares his journey with MG, from fighting for a diagnosis to making a difference through research participation.

Patient Spotlight
MGNet
Myasthenia Gravis Rare Disease Network
myasthenia gravis
Pilot Grant Program for Myasthenia Gravis
New Myasthenia Gravis Rare Disease Network (MGNet) Funding Opportunity: Pilot Grant Program
December 08, 2021

The Myasthenia Gravis Rare Disease Network (MGNet), in partnership with the Myasthenia Gravis Foundation of America and Conquer MG, is seeking applications for its Pilot Grant Program.

Myasthenia Gravis Rare Disease Network
MGNet
Funding opportunity
Pilot Grant
Rare Disease Research Challenges, Opportunities Due to COVID-19 Featured in New Article
Rare Disease Research Challenges, Opportunities Due to COVID-19 Featured in New Article
May 04, 2021

Challenges in conducting clinical research in the midst of the COVID-19 pandemic are spotlighted in an article from three consortia of the Rare Diseases Clinical Research Network (RDCRN). Their contribution was featured in the latest issue of Rare Neurological Diseases Special Report.

Frontiers in Congenital Disorders of Glycosylation Consortium
FCDGC
Myasthenia Gravis Rare Disease Network
MGNet
Global Leukodystrophy Initiative Clinical Trials Network
GLIA-CTN
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The Rare Diseases Clinical Research Network (RDCRN) is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). The RDCRN websites are hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke (NINDS) under grant number TR002818.