osteogenesis imperfecta | Rare Diseases Clinical Research Network

Exploring Oral Health-Related Quality of Life in Children with Osteogenesis Imperfecta Dakota Campbell Wed, 08/26/2020 - 13:52

Zoe Fang, an osteogenesis imperfecta (OI) patient, at an arcade

In a new study, researchers in the Rare Diseases Clinical Research Network’s Brittle Bone Disorders Consortium (BBD) surveyed adolescents with osteogenesis imperfecta (OI) to learn about their oral symptoms and how these affect their quality of life. Participants’ answers are clarifying the oral health needs of kids with OI and guiding future research for orthodontic interventions.

Brittle Bone Disorders Consortium

BBD

osteogenesis imperfecta

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The Rare Diseases Clinical Research Network (RDCRN) is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Office of Rare Diseases Research (ORDR). The RDCRN websites are hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke (NINDS) under grant number TR002818.