Working together to find better treatments
& improve the quality of life for
individuals with rare diseases
The Rare Diseases Clinical Research Network (RDCRN) an initiative of the Office of Rare Diseases Research, NCATS, is made up of 22 research groups (consortia) and a Data Management and Coordinating Center that are working together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community. The RDCRN provides up-to-date information for patients and assists in connecting patients with advocacy groups, expert doctors, and clinical research opportunities. More about the RDCRN >
Rare Disease Information
Find a disease Search the diseases we study, find consortium information, patient advocacy and study information.
Publications Download a list of publications by RDCRN researchers
Find Patient Advocacy Groups The RDCRN Coalition of Patient Advocacy Groups (RDCRN-CPAG) represents the perspective and interests of all patient advocacy organizations associated with the diseases we study.