Expanding knowledge; developing new strategies and methods for diagnosis, treatment, and prevention of illness and disability resulting from the porphyrias

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See opporunities to participate in research, join the RDCRN Porphyrias Contact Registry, or find a patient advocacy group.

Healthcare Professionals


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Research offers no guarantees, but research cannot move forward without your help. Every active role a patient takes may possibly play a part in discovering new groundbreaking research and finding new treatments.

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Participating Clinical Centers

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