The Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups that is working to advance the pace of clinical and translational research in the dystonias to find better treatments and a cure. We can help you:

  1. Learn about how you can participate in clinical research to help in the effort to learn more about your condition
  2. Get in contact with experienced doctors and other providers familiar with your condition
  3. Get in contact with other people with your condition who may wish to share their knowledge and experience through patient support groups
Learn About Dystonia

Dystonias Defined:

arrow What is the Dystonia Coalition?

arrow Patient Glossary

arrow Other Resources

Information for Professionals

arrow Treatment Guidelines

arrow Working Together: How You Can Contribute to the Dystonia Research

arrow Dystonia Coalition Published Articles 

arrow Participating Centers

Get Involved

Join a Study:
Find Information About Current Research

Find Support: Patient groups
and national organizations


Global Dystonia Registry

You Can Help Shape Dystonia Research -

Your responses can help researchers better understand the dystonia experience and help guide future directions in research.

Learn how to join >




News and Events

Caution about Getting Information from the Internet (The Dystonia Coalition agrees with the recommendation in a letter to the Editor of The New England Journal of Medicine (September 22, 2011))