The Rare Diseases Clinical Research Network (RDCRN) an initiative of the Office of Rare Diseases Research, NCATS, is made up of 22 research consortia and a Data Management and Coordinating Center that are working together to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community. The RDCRN provides up-to-date information for patients and assists in connecting patients with advocacy groups, expert doctors, and clinical research opportunities. More about the RDCRN >

Find a disease
Find a description, consortium information, patient advocacy and study information for each disease studied under the RDCRN.

Who we are
Get to know the 22 different research groups and which diseases they are studying.

Find a study
Find information about the RDCRN studies.

Download a list of publications by RDCRN researchers

Are YOU Interested in Research on Rare Diseases?
Stay Connected - Join the Contact Registry!

Receive the most current information on:

  • open recruitment for clinical studies of your disease
  • opening of new clinical sites doing research on rare diseases
  • activities from affiliated awareness and advocacy groups

...and future opportunities to participate in research!
Register Today

Find Patient Advocacy Groups
The Coalition of Patient Advocacy Groups (CPAG) represents the perspective and interests of all patient advocacy organizations associated with the diseases we study.

Stay Connected - Join the Contact Registry
Register to be notified of available research in clinics or online.

What is the RDCRN?
Aims of the Rare Diseases Clinical Research Network

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