We greatly appreciate your interest in this study and in advancing the understanding of Osteogenesis Imperfecta.
In order to participate, you must contact the study coordinator of any of the participating institutions by phone or by e-mail. Please use the information below to inquire about participation.
Baylor College of Medicine
Principal Investigator: V. Reid Sutton, MD
Contact: Dianne Nguyen
Address: Molecular and Human Genetics,
One Baylor Plaza R814 Mail Stop 225
Houston, Texas 77030
Phone: 713-798-6694
Fax: 832-825-1515
Email: diannen@BCM.edu
Shriners Hospital for Children, Montreal
Principal Investigator: Frank Rauch, MD
Contact: Michaela Durigova
Address: 1529 Cedar Avenue,
Montreal, QC, Canada H3G 1A6
Phone: 514-282-7158
Email: mdurigova@shriners.mcgill.ca
Shriners Hospital for Children, Chicago / Marquette University
Principal Investigator: Peter Smith, MD, and Gerald Harris, PhD, PE
Contact: Angela Caudill, MPT
Address: P.O. Box 1881
Milwaukee, WI 53201
Phone: 773-385-5868
Email: acaudill@shrinenet.org
Kennedy Krieger Institute / Hugo W. Moser Research Institute
Principal Investigator: Mahim Jain, MD
Contact: Jennifer Nagy, RN
Address: 801 North Broadway,
Baltimore, MD, 21205
Phone: 443-923-2704
Fax: 443-923-2705
Email: Nagy@KennedyKrieger.org
Children’s National Health System
Principal Investigator: Laura Tosi, MD
Contact: Christina Dollar
Address: 111 Michigan Avenue, NW
Washington, DC 21205
Phone: 210-320-2157
Email: cdollar@childrensnational.org
Hospital for Special Surgery
Principal Investigator: Cathleen Raggio MD
Contact: Elizabeth Yonko
Address: 535 East 70th Street
New York, NY 10021
Phone: 212-774-2355
Email: YonkoE@HSS.edu
University of Nebraska Medical Center
Principal Investigator: Paul Esposito, MD
Contact: Elizabeth Strudthoff, RN
Address: 985456 Nebraska Medical Center,
Omaha, NE 68198-5456
Phone: 402.559.0681
Fax: 402-559-2920
Email: Elizabeth.Strudthoff@UNMC.edu
University of California Los Angeles
Principal Investigator: Deborah Krakow, MD
Contact: Samantha Alon
Address: 615 Charles E. Young Dr. South Rm 410
Los Angeles, CA 90095-7358
Phone: 310-794-6420
Fax: 310-206-5266
Email: SAlon@mednet.UCLA.edu
Oregon Health and Science University
Principal Investigator: Eric Orwoll, MD
Contact: Melanie Abramson
Address: 3181 SW Sam Jackson Park Road, CR113
Portland, OR 97239
Phone: 503-494-0225
Fax: 503-494-6595
Email: abrahamm@OHSU.edu
Shriners Hospital for Children, Tampa
Principal Investigator: Danielle Gomez, MD
Contact: Margaret Gross-KIng
Address: 12502 USF Pine Drive, Tampa, Florida 33612
Phone: 813-972-2250 x7538
Email: MGKing@ShrineNet.org