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7410: Motivations and Barriers for Participation in Clinical Trials by Individuals with Mitochondrial Disease

Status: No Longer Recruiting

Study Paper

A new paper is now available online (open access) at

http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0197513

Summary

The purpose of this study was to learn about what factors motivate or prevent a person with mitochondrial disease or their family from deciding to participate in clinical trials.

Adults with mitochondrial disease and parents of children with mitochondrial disease were asked to complete an online survey about what factors motivate or prevent a person with mitochondrial disease or their family from deciding to participate in clinical trials.

 

How to participate

This study is no longer recruiting patients.

To be notified of future research, please Join the Contact Registry