Learn about the porphyrias we study, find a participating clinical center near you, see frequently asked questions.
See opporunities to participate in research, join the RDCRN Porphyrias Consortium Contact Registry, or find a patient advocacy group.
Find advanced medical descriptions and information for diagnosis of the porphyrias
Research offers no guarantees, but research cannot move forward without your help. Every active role a patient takes may possibly play a part in discovering new groundbreaking research and finding new treatments.
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