What is the Vasculitis Patient-Powered Research Network (V-PPRN)?

The Vasculitis Patient-Powered Research Network (V-PPRN) is an extension of the VCRC Contact Registry. When you join the V-PPRN you will automatically be enrolled in the VCRC Contact Registry. The V-PPRN collects more in-depth information for vasculitis research on our secure patient portal.

The V-PPRN seeks to conduct research in vasculitis in a new way by working directly with patients with vasculitis:

  • Patients will share their own clinical experiences and data
  • We will use the great potential research power of computerized health records
  • We will conduct research that matters to patients with vasculitis, including a range of studies from surveys to observational studies to clinical trials of new treatments.

The VCRC Contact Registry is the first step in becoming involved in vasculitis research. The V-PPRN is the next level of participation in vasculitis research.