What was your consortium's most significant achievement from the past year?
Shanlee Davis, MD, PhD, Project 1 (InsighTS/GalaXY) Principal Investigator, NASCARR: Enrollment numbers in our natural history studies: InsighTS and GalaXY exceeding our goals, currently with >1500 participants!
How will this advance the goals of your consortium and/or the RDCRN at large?
Nicole Tartaglia, MD, Principal Investigator, NASCARR: NASCARR includes a large group of amazing research teams and clinicians from academic centers across the country. The dedication of these research teams and the InsighTS and GALAXY steering committees, combined with the strategic promotion and recruitment efforts of our partnering family advocacy groups, has driven the outstanding progress.


